Hi... Wednesday night... stupid TV... will try and will my body to stay up and watch "Body of Proof"
Surgery done two weeks ago. Dr. Kwitko did great and fixed my R eye i was having.
Sleeping better now that we are on daylight savings time which should be permanent in my opinion. Must take my Melatonin.
Still looking for work, wondering was i even meant for this institution. I get so many interviews, phone,, and internet ... and most jobs (call centers) need you to take this assessment thing/personality etc... which I never ever get through/pass.
I must have taken 100 of them over the last 10 years...
I took the first step to inquire from a law office about filing for disability.
The lady said she works at a small office. She was so sweet and i talked a little but tried my best to listen and just answer her prelim. questions. So, she is going to send me a four page interview questionaire and she requests a copy of soc security statement which shows how much i have worked over that last years. The lawyer will take a look at both and at that time... if he thinks i have a case... i will meet him at his office to discuss things further.
Check up with Dr K April 9 then also an internist at the request of mama... Dr. Reed
and at that time will get blood work done and ask her about meds, maybe take B complex because I have painful neuropathy from time to time.
Will ask Dr. K and Dr. Reed (internest) about getting a referral to get tested again for CPEO... to get a confirmed diagnosis at least..
that is all for now... thank you for this opportunity and therapy
In 2009 I moved from FL to MD. This move resulted in a diagnosis of CPEO- Chronic progressive external ophthalmoplegia in 2011. I was most likely born with this disease (as I had eye muscle surgery at 18 mnths) and was just not tested. I supposed the CPEO laid dormant in my body till 2010 when I began to have severe glare issues and eye pain. My journey has been very short compared to most.
Tuesday, March 26, 2013
Sunday, February 24, 2013
In two weeks I will be headed over to s tampa to stay with mama for a week while I get the second round of surgeries on my eyes. My lower lids are really droopy and b/c my eyes are so dry... dr is going to try to lift those too see if that gives me a bit of comfort and to see if that will help my eyelids close together.
The first srrgeries were August 2012 when i got my eyelids probed. That was freakin painful...It helped releave a bit of eye pain b/c Dr. M put these needles up in my eyelids b/c the oil glands were not producing any oil to lubricate my eyeballs. Only thing that helps is a hot bath or shower really.
The first srrgeries were August 2012 when i got my eyelids probed. That was freakin painful...It helped releave a bit of eye pain b/c Dr. M put these needles up in my eyelids b/c the oil glands were not producing any oil to lubricate my eyeballs. Only thing that helps is a hot bath or shower really.
Tuesday, February 19, 2013
snap, ebt, access Florida
well, i got a little card today with some money on it, and it is not exactly a gift card.
It is EBT, Access Florida or in layman terms... food stamps.
I am very excited because i dont go to the grocery store often. Everything at the grocery store is
processed and it is basically bad for you. There are fruits and vegetables but you have to cut/chop
cook them in order to eat them. What a pain. I am thankful because you can probably buy salad and stuff
like that. You can't buy paper products. i need to use it in one month and i don't know how long i get it.
I could have really used that money, but o well. i did not realize how easy it would be to apply and bamm!
The card comes in the mail. I did apply for Medicaid as well. I think that will be a lengthy process.
some other stuff happened today but it will get me feeling sad, so what is the point...Whoever is out there, listening to me, pls let me know. i will be happy for that critisism. I do not want to compare my blog to others fantastically done and exciting lives that people live... It is nice to write this. God Bless you and
and for sure need to be on my knees in prayer...
It is EBT, Access Florida or in layman terms... food stamps.
I am very excited because i dont go to the grocery store often. Everything at the grocery store is
processed and it is basically bad for you. There are fruits and vegetables but you have to cut/chop
cook them in order to eat them. What a pain. I am thankful because you can probably buy salad and stuff
like that. You can't buy paper products. i need to use it in one month and i don't know how long i get it.
I could have really used that money, but o well. i did not realize how easy it would be to apply and bamm!
The card comes in the mail. I did apply for Medicaid as well. I think that will be a lengthy process.
some other stuff happened today but it will get me feeling sad, so what is the point...Whoever is out there, listening to me, pls let me know. i will be happy for that critisism. I do not want to compare my blog to others fantastically done and exciting lives that people live... It is nice to write this. God Bless you and
and for sure need to be on my knees in prayer...
Sunday, February 10, 2013
So many animals and humans have not found/chosen their forever home... I pray for them all.... What would happen, instead of cute puppy pictures were posted all day on the internet, people's pictures were posted (needs to be adopted)...??? well... This would never happen... As much as I get super sad about these precious animals who need to find their forever home with a human.... I need to be saddest for God's children who have not chosen HIM.
Tuesday, February 5, 2013
Good morning, from
Our Daily Bread
Dear Lord, please help me not to harbor resentment
Our Daily Bread
Dear Lord, please help me not to harbor resentment
and bitterness in my heart. Through the power
of the Holy Spirit, enable me to let go of my
bitterness and forgive those who have hurt me.
amen....
Monday, February 4, 2013
Burning Eyes
This evening my eyeballs are burning... Scheduled lower eyelid lifts a week from today. Voc Rehab mtg. in the morning....so thankful for that!Bear with me as i try to maneuver this blog. If i can keep my eyes open till 11 or so and sleep till 8.... I'm golden. We'll see.... byu
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